Jeneice Lusk shared a deeply personal story of her tough pregnancy with her son here. Here is Part 2 of her story and the value of community.
(Warning: the following contains sensitive content on issues related to infertility, miscarriages, and infant loss.)
Keegan was born on April 1st but I didn’t meet him until the next day. He was beautiful, but so tiny and too ‘new’. I was amazed at God’s grace and His ability to create such a tiny, perfect (yet immature) being. I was in awe.
One week into his life, the NICU team was already amazed by Keegan’s ability to fight. To them, he was the king of ganbatte (Japanese term telling you to endure/fight/do your best). He was the miracle baby, a testimony. They were shocked he was still alive and overcoming every obstacle. He needed transfusions of platelets and plasma, but his heart, lungs and brain were good. Over three weeks old, we could finally touch him gently. Days eight through twenty-eight of Keegan’s life were great.
Then the edema began, overnight. Keegan’s condition was declining and the doctors were not optimistic about the outcome, yet not hopeless considering what they’d seen him overcome. This is when we learned they had no treatment options left and it was basically between Keegan, his body, and God.
That was Tuesday.